Latest News

Mid- Summers Night Ball
Alpha-1 Fundraiser:
The Mid-Summer's Night Ball in the Spa Hotel Lucan on the 23rd of June 2012.
Competition for the best dressed lady.
Tickets €25, doors at 8.30 with dinner at 9.30.
Music provided by John Walsh Entertainment.
Contact the Alpha One Foundation on (01) 8093871 for more information.
 
Agenda for 2011 Patient's Meeting
Wednesday, 21 September 2011 10:29

Alpha-1 Patients’ Conference Friday October 7th 2011


Agenda

09.30 Registration, Tea and Coffee

10.00 Prevalence of Alpha-1 in Ireland
     Dr Tomas Carroll, Alpha One Foundation

10.30 Adherence in Chronic Diseases
         Dr Frank Doyle, Lecturer in Psychology, RCSI
     
11.00 Alpha-1 Developments and Children diagnosed with Alpha-1
          Prof N.G. McElvaney, Respiratory Consultant, Beaumont Hospital

11.30 Citizen Information Services
          Cristina Santamaria, Development Manager, Northside Citizen Information  

12.00 Patient Empowerment
          Angela McBride, Director of Development, Alpha-1 Foundation, US

12.45 Light Lunch Provided in College Cafeteria
 Representatives from the following groups will be present during this interval
           Health Promotion Unit Beaumont Hospital,
           Children’s Liver Disease Ireland
           Asthma Society of Ireland
           Citizen Information Services  

14.00 Pulmonary Rehabilitation/Breath Smart Programme
         Dr Noel McCaffery, Medical Director, Breath Smart Programme, DCU

14.40 Alpha-1 Support Group Meeting

16.00 Close


 

The Patients' Meeting  will be held in the Marino Institute of Education. Please see location and directions below:

Location: 

Marino Institute of Education,
Griffith Avenue, Dublin 9 Ireland
t: +353 1 805 7700  

Directions from the City Centre
From the top of O Connell Street, drive past Parnell Square to the Drumcondra Road.
Follow the signs to the airport.
After the Skylon Hotel, take a right at the next large crossroads; this brings you down Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
 
Directions from the M50
After the West link toll Booth on the M50 drive towards the Airport.
Take a right exit towards the City centre from Junction 3 at the M50.
Drive the MI to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
 
Directions from the Airport
Exit the Airport and drive on the MI to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.


Car Parking Complimentary Car Parking Facilities are available in the grounds for up to 150 cars.

 

What is Alpha-1 Antitrypsin?

Alpha-1 Antitrypsin is an important protein produced by the liver, which is released into the bloodstream and travels to the lungs.  Once inside the lungs it provides protection from the destructive effects of infections and harmful irritants, particularly tobacco smoke.

Alpha-1 Antitrypsin Deficiency

Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, along with cystic fibrosis, is the commonest genetic lung disease in Ireland. It severely affects more than 2,000 people nationally, with another 10,000 individuals also at risk of lung and liver disease. It is the only proven genetic risk factor for COPD.