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Wednesday, 26 August 2009 16:32 |
http://www.alphaone.org/
Link to the US Alpha-1 patient website, very useful and informative.
http://www.alphanet.org/
US website provided and maintained by Alpha-1 patients for Alpha-1 patients.
http://www.alpha1awareness.org.uk/welcome.htm
Patient website maintained by the UK Alpha-1 Awareness Group.
http://www.alpha1kids.org/index.php
Very helpful website for parents of newly diagnosed children with Alpha-1.
http://www.alphaone.ufl.edu/aboutus.php
A link to the University of Florida Alpha-1 program which describes the many screening and research initiatives.
http://www.dohc.ie/press/speeches/2004/20040421.html
Link to the Department of Health and Children website and to the Minister’s speech at the opening of the Alpha One Suite in Beaumont Hospital, April 2004.
http://www.bbc.co.uk/health/conditions/alpha1.shtml
Excellent website, easy to understand, and very informative.
http://www.labtestsonline.org.uk/understanding/analytes/alpha1_antitrypsin/glance.html
Information about Alpha-1 and how it is diagnosed.
http://www.airproducts.ie/homecare/patients_carers/hos/goingonholiday.htm
Information on oxygen supplier information and contact details for tourists and people travelling overseas.
http://www.giveupsmoking.ie/
Site dedicated to smoking cessation.
http://www.copdsupport.ie/
Detailed Irish website on COPD.
http://www.ncnm.ie/anail/index.asp
Website of the Respiratory Nurses Association of Ireland. Email them to put up our site as link!
http://www.asthmasociety.ie/
Website for the Asthma Society of Ireland. Email them to put up our site as link!
http://www.mrcg.ie/
Website of the Medical Research Charities Group, an umbrella group of medical research and patient support charities.
http://www.ipposi.ie/
Website of the Irish Platform for Patients’ Organisations, Science, and Industry, which seeks to foster close links between Patients, Clinicians, Academic Scientists, Industry, Regulators, Policy Makers, and is recognised by the Department of Health.
http://www.grdo.ie/
The Genetic and Rare Disorders Organisation (GRDO) is a non governmental organisation acting as a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare disorders.
http://www.publichealth.ie/
The Institute of Public Health in Ireland (IPH) promotes cooperation for public health between Northern Ireland and the Republic of Ireland. IPH was established in 1998 and has offices in Belfast and Dublin.
http://www.eurordis.org/secteur.php3?id_rubrique=1
The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.
http://www.hse.ie/eng/
The Health Service Executive (HSE) is responsible for providing Health and Personal Social Services for everyone living in the Republic of Ireland.
http://www.derryjournal.com/inishowen?articleid=2981784
Link to Derry Journal newspaper article about an Alpha-1 patient John Hannan and his horse-ride from Mizen Head to Malin Head to raise awareness about the condition.
http://www.dnaftb.org/dnaftb/
This is an animated site describing the basics of DNA, genes, and heredity. Key concepts of genetics are explained using animation, image galleries and video interviews. Kept at a fairly basic level but impressively done nonetheless.
http://www.innerbody.com/
Educational site detailing the anatomy of the human body.
http://www.chg.duke.edu/education/glossary.html#inherited
Excellent website from Duke University explaining genetic words and phrases.
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