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Annual Alpha-1 Patient Meeting 2009 |
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Monday, 12 October 2009 09:50 |
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The annual Alpha-1 patient meeting will be held on Saturday 10th October at 10.30am in Marino Institute of Education on Griffith Avenue, Dublin 9. All Alpha-1 patients and their families are invited to attend this forum. Invited speakers will be discussing issues relevant to Alpha-1 patients, including disease management, current research, and ongoing clinical trials in Beaumont Hospital. |
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Wednesday, 30 July 2008 09:43 |
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Since April 2008 the Patient Support Group has organised five meetings, all members receive minutes and agenda of these meetings. These were held in the Alpha One Foundation’s office located in the RCSI Building at Beaumont Hospital. This venue can be changed at any time as organised by the group. Items discussed range from awareness to feedback of delegates to international patient meetings e.g. Prague in May 2008. Attendance has been low recently but we hope to improve this with an awareness campaign in October 2008. We would encourage patients to keep in contact with other patients and we hope to develop a newsletter updating members of news events and patient stories. |
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