A major new report on the burden of lung disease on Ireland’s population has been published.  "Respiratory Health of the Nation 2018" provides an overview of the impact of respiratory disease in the country as well as information on 11 common respiratory conditions and their impact on two key population groups – children and older people.  The report draws information from a range of sources and provides the most accurate and comprehensive picture to date of our nation’s respiratory health.

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Alpha-1 Foundation Ireland today (November 15th) welcomes the decision of the HSE/Department of Health and CSL Behring to approve the continued supply and administration of the life-changing therapy, Respreeza, for a small group of patients with Alpha-1.  The development is a huge relief to 19 of 21 patients who have been receiving the therapy for over 10 years on a "compassionate-use basis", from CSL Behring, the makers of the therapy.  Regrettably two of the original 21 patients died while off the treatment in 2017 as the supply and administration of the therapy was stopped for a period of 6 weeks. 

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Alpha-1 Conference 2018 took place in the Marino Institute of Education in Dublin on Friday, October 12th.  A large gathering braved Storm Callum and the severe weather warning, with some hardy souls rising as early as 4am that morning to make the long journey to Dublin.  A mix of familiar faces and first time attendees enjoyed tea, coffee and scones on arrival. 

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Alpha-1 Conference 2018 takes place Friday, October 12th in Marino Institute of Education in Dublin. Special guest is Mr. Joe Duffy, RTE Broadcaster, who will open proceedings at 10am. The theme for this year is "Family Matters" with a special emphasis on the importance of family screening. 

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