Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.  

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COVID-19 is a new illness that can affect your lungs and airways.  It is caused by a virus called coronavirus. 

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An Easy Guide to Rare Diseases in Ireland was launched on February 24th in the Mansion House in Dublin.  The guide is designed for the general public, healthcare professionals and the government.  It is the culmination of a lot of hard work by people across the rare disease sector, particularly Rare Disease Ireland, Health Research Charities Ireland (HRCI), and IPPOSI

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Alpha-1 Foundation Ireland has been chosen as a global Alpha-1 leader in a new scheme to help other countries as they develop detection, advocacy, and awareness activities. 

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