Coronavirus Update

COVID-19 is a new illness that can affect your lungs and airways.  It is caused by a virus called coronavirus. 

UPDATED: 22nd October 2020

Alpha-1 antitrypsin deficiency (Alpha-1 for short) is a genetic condition and many people with it are healthy and well.  For this group, the risk to your health due to COVID-19 is the same as someone your age without a diagnosis of Alpha-1 and you should follow the public health advice around hand washing, wearing a face mask, sneeze etiquette, and reducing social interactions as much as possible (more details on the HSE website here).  However, some people with Alpha-1 have serious lung diseases like COPD and emphysema and are more vulnerable to the effects of COVID-19.  If you have serious lung (or liver) disease caused by Alpha-1 you need to exercise caution to avoid infection with COVID-19.  This should involve precautionary measures to ensure your safety as a vulnerable person with a serious health condition.  This can mean staying at home as much as possible and avoiding unnecessary contact with other people.

LATEST ADVICE

Ireland moved to Level 5 of "National Plan for Living with COVID-19" on midnight Wednesday 21st October.  See the measures that came into place here.  This is for a period of 6 weeks.  All 5 levels of the National Plan can be viewed in full here.  Importantly, with the wide spread of COVID-19 in the community we now recommend that all ZZ regardless of symptoms (i.e. whether healthy or not) should closely follow public health advice, exercise caution and reduce unnecessary social contacts.  Advice for other forms of Alpha-1 stays the same.  For those with Alpha-1 who are ZZ, SZ or MZ and who do have severe chronic obstructive pulmonary disease (COPD), severe liver disease, or have received a lung or liver transplant it remains vital to follow health advice and reduce unnecessary social contacts.  This will reduce the risk of life threatening COVID-19 infection.  If you have any questions about this advice please contact us on 01-8093871 or email This email address is being protected from spambots. You need JavaScript enabled to view it.

Following requests by Alpha-1 Foundation Ireland, updated HSE guidelines now include people with severe lung disease caused by Alpha-1 (be that ZZ, SZ, or MZ) as a high risk group.  This group should continue to follow the public health advice to stay home as much as you can and reduce unnecessary contact with other people, leaving home for exercise or essential shopping.  This careful approach can be lonely and frustrating but the advice is designed to protect your health as an extremely vulnerable person.  Should you wish to engage in other outdoor activities you should continue to strictly adhere to the public health and social distancing guidance. 

To be clear, the following Alpha-1 groups should exercise caution and reduce unnecessary social contacts as much as possible: 

  • All people who are ZZ, whether healthy or not
  • People who are SZ or MZ with severe lung disease (e.g. COPD, emphysema, bronchiectasis) or severe liver disease (e.g. cirrhosis)
  • People who are ZZ, SZ, or MZ and have received a lung or liver transplant

 

On the other hand, if you are ZZ, SZ, or MZ and do not have severe lung or liver disease or have not received a lung or liver transplant you should follow the latest government advice for the general population which is to maintain social distancing, continue to wash your hands often and well, follow good respiratory etiquette when coughing or sneezing, and avoid crowded areas where possible. 

NOTE: If you do not know if you are ZZ, SZ, or MZ type Alpha-1, please ring the Foundation on 01-8093871 to discuss.

Remember your family and friends can be your first line of defence in preventing infection.  Please encourage them to strictly adhere to the hygiene guidelines and refrain from any contact with you until they have washed their hands and taken all necessary steps.  Everyone can play a role to stop the spread of COVID-19. 

In order to support the Alpha-1 community at this difficult time, we have two processes in place:

  1. An Alpha-1 Helpline [01-8093749] is available Monday to Friday 1pm – 2pm. This will be attended by a member of the Alpha-1 Medical team who will answer any concerns you may have.

  2. For all other times we invite people to submit questions to This email address is being protected from spambots. You need JavaScript enabled to view it. and we will respond in a timely fashion.

For people with a lung disease, such as emphysema or COPD, there is an excellent Q&A interview with an infectious diseases expert that can be found on the European Lung Foundation website hereThis article has been updated since it first appeared and now includes even more information and advice for people with lung problems. 

There is an excellent new COVID-19 section on the HSE Health Protection Surveillance Centre website here.  The World Health Organisation also has an excellent Q&A section here. This page and a dedicated WHO Coronavirus website here are being updated regularly as knowledge of the virus improves. 

Importantly, if you are a Medical Card or GP Visit Card holder whose card has recently expired, or is due to expire soon, the HSE has extended eligibility automatically for up to one year for existing cards which expire during the COVID-19 pandemic.  For more information on this issue visit the HSE website here.

NOTE: Always remember to get your information from reliable and trusted sources, and do not use unverified sources on the internet or on social media. 

OTHER RESOURCES

HSE COVID-19 Tracker App

The free HSE smartphone app is designed to help improve contact tracing for COVID-19.  The app will make contact tracing faster and more accurate, reducing the spread of COVID-19.  We strongly recommend people download the HSE COVID Tracker App here to help protect those who are vulnerable.  To read more information on the app in simple terms click here.

If you use the app, you can:

  • get an alert if you have been in close contact with someone who tests positive for COVID-19
  • alert others if you test positive for COVID-19 – this will help keep other people safe
  • track your symptoms and get advice on what to do if you’re sick
  • get regular updates, and protect yourself and others as we learn to live with COVID-19

Minding your long-term health condition during the COVID-19 pandemic

An information leaflet to support people living with a long-term health condition can be downloaded here.  This leaflet provides practical and clear information to support people to manage their long-term health condition and to stay well. This resource was developed by the National Self-management Support Coordinator Team and approved by the National Clinical Care Programmes for Diabetes, Respiratory and Heart Failure.

Weekly Activity Planner for people with dementia, families and carers

A Weekly Activity Planner containing suggestions for a balanced plan of physical, cognitive and relaxing activities, to assist with creating new routines can be downloaded here.  

Minding your Mental Health

The spread of COVID-19 is a new and challenging event.  Some people might find it more worrying than others and may need some extra support.  There are many things you can do to mind your mental health during times like this.  Read more about the mental health resources that are available here.  There is also a Mental Wellbeing campaign "In This Together" which offers support and resources for people to help deal with stress and isolation, and also helps people maintain wellbeing and cope at home during this time.  The "In This Together" website can be found here.

STAY INFORMED

Importantly, because health information and guidance on COVID-19 can change rapidly, Alpha-1 Foundation Ireland recommends that the Alpha-1 community review the following 3 websites on a regular basis.  They are key sources of reliable, expert health information about COVID-19 (Coronavirus).  

  • To find out more about COVID-19 (Coronavirus) visit the HSE website here
  • For latest updates from the Health Protection Surveillance Centre visit here
  • For travel advice visit the Department of Foreign Affairs website here

If you have concerns you may have COVID-19 (Coronavirus) phone HSE Live on 1850 24 1850.  For all other health issues please contact your GP as normal.  

If you want to find out more about Alpha-1 why not check out our video gallery here.

GETTING TESTED

Phone your GP to be assessed for a COVID-19 test if you are in one of these situations:

1. You suddenly experience one of these symptoms and there is no other obvious cause:

  • fever
  • cough
  • shortness of breath
  • loss or change to your sense of smell or taste – this means you've noticed you cannot smell or taste anything, or things smell or taste different to normal

2. You have been in close contact with someone you think or know has COVID-19 in the last 14 days and suddenly experience one of these symptoms:

  • fever
  • cough
  • shortness of breath
  • blocked nose or sinus
  • stuffed or runny nose
  • sore throat
  • wheezing

GP Assessment

Your test and GP assessment will be free of charge.  Phone your GP.  Please do not go to a GP surgery, pharmacy or hospital.  The GP will assess you over the phone.  Any GP can arrange a test for you.  Your GP may refer you to a Coronavirus community assessment hub.  Do not ring GP out-of-hours services.  They cannot arrange testing.  For a detailed explanation of the testing process visit here

PREVENTION

REMEMBER TO TAKE EVERYDAY PREVENTATIVE ACTIONS that are always recommended to prevent the spread of ALL respiratory viruses.  In the absence of a vaccine and specific treatments, at the moment prevention is our best weapon.

  • Stay at home as much as possible
  • Follow social distancing advice
  • Wash your hands often with soap and water for at least 20 seconds. If soap and water are not available, use an alcohol-based hand rub with at least 60% alcohol.
  • Cover your nose and mouth when you cough or sneeze. Avoid touching your eyes, nose and mouth with unwashed hands; germs spread this way.
  • Clean and disinfect surfaces and objects that may be contaminated with germs. 
  • Avoid close contact with sick people.
  • Encourage good hygiene in your home.  Your family and friends can be your first line of defense.

Following these guidelines can help prevent the spread of this virus and save lives.