We are happy to announce the details of our Annual Patient Conference for 2010 which is taking place on Friday, October 8th, at 10.00am in Marino Institute of Education, on Griffith Avenue on the northside of Dublin city centre.

The Institute is easily accessed from the M50 and is situated on Griffith Avenue (see directions on http://www.mie.ie/About-MIE/How-to-Find-Us.aspx).

We encourage all patients and family members to attend this meeting. If you have any enquires please contact Kitty O’Connor at 01-8093871. We have done our best to respond to the inquiries and suggestions of patients in putting this year’s agenda together. We think that it will be an exciting and interesting meeting. We very much welcome partners and other family members. Don’t forget that you do not have any condition in isolation, it affects the whole family. Hopefully, this conference in some small way will improve your family’s understanding of the condition (please bring suitable (casual/comfortable) clothing and footwear for the relaxation workshop).

We look forward to an enthusiastic and well-attended conference and to meeting you all there.


A Charity Fashion sale will take place in aid of the Alpha One Foundation in the Glenroyal Hotel, on Friday 19th February 2010, 7.00pm - till late. 

Music with DJ, spot prizes and raffles galore. Tickets €5. Large selection of new and nearly new clothes on available on the night. Contact Kitty O'Connor on 01-8093871 for more details.


Health Service Executive (HSE) and Department of Health Swine Flu Update 30th October 2009: From Monday 2nd November the HSE will have 45 specialised clinics around the country to provide vaccinations for at risk patients whose GPs are not offering the vaccine (these are listed below along with opening times). 

Appointments for these centres can be made on the internet at www.hse.ie from Monday 2nd of November onwards.

Clinic Address with Opening Times and Bookings

Pre-Discharge Unit, Kilcreene Hospital, Kilkenny
Nov 2nd-6th, 9am-5pm
Nov 16th-20th, 9am-5pm
St. Anne's Ward, St. Dympna's Hospital, Athy Road, Carlow Town
Nov 9th-13th, 9am-5pm
Nov 23th-27th, 9am-5pm
South Tipperary  
St. Claire's Ward, St. Luke's Hospital, Western Road, Clonmel
Mon, Tues, Wed 9am-5pm
Our Lady's Hospital, Boherclough St, Cashel
Thurs, Fri 9am-5pm
HSE Community Services, Cork Road, Waterford
Thurs 9am-5pm
Friday 9am-1pm

New Community Day Hospital, Dungarvan, Co. Waterford
Mon, Tues, Wed 9am-5pm
St. John's Community Hospital, Enniscorthy, Co. Wexford
Mon-Fri 9am-5pm
Cork City
Neptune Stadium, Blackpool, Cork City
Mon, Tues 10am-4pm
Thur, Fri 10am-3pm
North Cork
Mallow GAA Complex, Mallow, Co Cork
Mon-Fri 10am-3pm
West Cork
Clonakilty Industrial Hall, Clonakilty, Co Cork
Mon-Fri 10am-3pm
St. Columbanus' Hospital, Killarney, Co. Kerry
Mon-Fri 10am-3pm
Dublin Northside
Darndale/Belcamp Community Sports Hall, behind Darndale/Belcamp Village Centre, Priorswood Rd, Darndale, D.17
Mon- Fri 9.30am-5pm
Ballymun Health Centre, Ballymun Civic Centre, Dublin 9
Mon-Fri 9.30am-5pm
St. Brendans Grangegorman Development Agency, St Brendan's Hospital, Rathdown Road, Dublin 7
Mon,Thurs,Fri 9.30am-5pm
FOLD Housing Unit, Cherryfield Lawn, Hartstown, Dublin 15
Tues,Wed 9.30am-5pm
Dublin Southside  
Bru Chaoimhín, Cork St, Dublin 8
Mon-Fri 9.30am-5pm
HSE Primary Care Centre, Rockfield Medical Centre, Balally, Dublin 16
Mon-Fri 9.30am-5pm
St. Colmcille's Hospital, Loughlinstown
Mon-Fri 9.30am-5pm
Education Centre, Tallaght Hospital, Tallaght
Mon-Fri 9.30am-5pm
Bridge House, Cherry Orchard Hospital, Dublin 10
Mon-Fri 9.30am-5pm
Ballinagh Community Centre, Main Street, Ballinagh, Co. Cavan
Nov 9th-10th, 9.30am-5pm
Nov 23rd-24th, 9.30am-5pm
Balieboro Community Centre, Shercock Road, Bailieboro
Nov 5th-6th, 9.30am-5pm
Nov 19th-20th, 9.30am-5pm
Teach na Daoine, Oriel Rd, (off Clones Road), Monaghan
Nov 2nd,3rd,4th, 9.30-5pm
Nov 16th,17th,18th, 9.30-5pm
St. Mary's Hospital, Castleblaney
Nov 11th-12th, 9.30am-5pm
Nov 25th-26th, 9.30am-5pm
Dunshaughlin Health Care Unit - Ground Floor, Dunshaughlin
Mon and Fri 9.30am-5pm
Physiotherapy Dept, Our Lady's Hospital Campus, Navan
Tue, Wed, Thur 9.30am-5pm
Louth Community Services, Dublin Rd, Dundalk, Co. Louth
Tue, Wed, Fri 9.30am-5pm
Haymarket Health Centre, John Street, Drogheda, Co. Louth
Mon and Thur 9.30am-5pm
Wicklow Health Centre, Glenside Road, Wicklow
Mon, Tues, Fri 9.30am-5pm
Newcastle Hospital, Newcastle, Greystones
Wed, Thurs 9.30am-5pm
Laois / Offaly
Riada House, Arden Road, Tullamore, Co. Offaly
Thurs, Fri 9.30am-5pm
Tribunal Rooms, St. Fintan's Hospital, Portlaoise
Mon, Tues, Wed 9.30am-5pm
Ward 1, Midland Regional Hospital, Mullingar, Co. Westmeath
Mon, Tues 9.30am-5pm
St. Joseph's Care Centre, Dublin Road, Longford (Beside MIDOC/Out Patients)
Wed, Thurs 9.30am-5pm
HSE Resource Centre, Clonbrusk, Athlone, Co. Westmeath (near B&Q)
Fri 9.30-5pm
Kildare / West Wicklow
Out Patients Department, Naas General Hospital Tel 045 981855
Tues 2pm-5pm
Thurs 9.30am-5pm
Fri 2pm-5pm
HSE Community Physiotherapy Dept, Tobartaoscain, Ennis, Co. Clare
Mon-Fri 9am-5pm
HSE Building, Ballycummin Business Park, Raheen Industrial Estate, Limerick
(Signposted from entrance to Industrial Estate)
Mon-Fri 9am-5pm

North Tipperary
HSE, The Derg Centre, Gortland Roe, Nenagh, Co. Tipperary
Mon-Fri 9am-5pm
Flat 4, Roscommon County Hospital, Roscommon Town
Mon-Fri 9am-5pm
Clinical Decision Unit, Mayo General Hospital, Castlebar, Co. Mayo
Mon-Fri 9am-5pm
Education Centre, Merlin Park Hospital, Dublin Road, Galway City
Mon-Fri 9am-5pm
Sligo / Leitrim / West Cavan
Nazareth House, Church Hill, Sligo Town
Mon-Fri 9.15am-5.15pm
Mulroy Room/Gweebarra Room, Education Centre, St Conal's, Letterkenny, Co.Donegal. 

The HSE and Department of Health have announced details of the Swine Flu Vaccination Programme, which will commence on 2nd November. 

As very few people in Ireland have any immunity to Swine Flu, over the coming months, the HSE will offer a Swine Flu vaccine to the entire population. However, as the vaccine is being delivered in phases, we will start with the people who are most at risk from Swine Flu. The people most at risk, and being vaccinated first are:

Pregnant women (from 14 weeks pregnant to 6 weeks after giving birth) and anyone aged over 6 months and under 65 years who has:

  • Long-term Lung Disease (Alpha-1, COPD)
  • Long-term Heart Disease
  • Long-term Kidney Disease
  • Long-term Liver Disease
  • Long-term Neurological Disease (like MS, Cerebral Palsy)
  • Immunosuppression e.g. cancer treatment (and their household contacts)
  • Haemoglobinopathies
  • Diabetes
  • Morbid Obesity (check with your GP)

People aged 65 and over seem to have some immunity to Swine Flu so they are not in the most at-risk group and will be vaccinated at a later stage.

From Monday October 19th we will start delivering vaccine and supporting supplies to those GPs who have indicated their participation in the programme, and those supplies will build up to the required capacity over the following ten days. Over that period, some GPs will have limited supplies, so people in at-risk groups may wish to call their GP and enquire about availability. From the 30th October all GPs who are participating should have enough vaccine to begin vaccinating all their at-risk patients.

Then, on November 2nd, a national information campaign will commence, inviting those in the at-risk groups to make contact with their GP and make an appointment to receive their vaccine at specific clinics. If a patient's GP is not participating, alternative arrangements will be put in place.

Once this group has been completed, over the coming weeks and months we will move to the other groups, including healthcare workers (to provide protection to their vulnerable patients), children and older people, before offering vaccines to the wider population.  More detail on the timing of vaccination for these others groups will be announced at a later date and through the HSE’s information campaign.

Information for People with Chronic Illness

Getting the Swine Flu vaccine will protect you from Swine Flu and will also stop it spreading to people around you.

Swine Flu is a new flu virus that, for most people, has caused mild to moderate illness. However, some children, pregnant women and people with long-term illnesses have been hit harder by this flu, and some have died. Most people have no immunity to Swine Flu so, over the coming months, the HSE intends to offer a Swine Flu vaccine to everyone living in Ireland.

Who will get the vaccine first?

Everyone will be offered the Swine Flu vaccine, but we are giving the first supplies to those who are more at risk from Swine Flu.  Healthcare workers will also be vaccinated to protect themselves and their patients.

When get I get the vaccine? 

We will start distributing the vaccine over the next 2 weeks, and GPs will have enough supplies for everyone from November 1st 2009.

How does the Swine Flu vaccine work?

The vaccine helps your immune system to produce antibodies to the Swine Flu virus. When a person who has been vaccinated comes into contact with Swine Flu these antibodies attack the virus and prevent you getting the flu.

How safe is the Swine Flu vaccine?

We expect the Swine Flu vaccine to be as safe as the usual seasonal flu vaccine, which has been used for more than 60 years. Serious side effects are expected to be very rare and the Swine Flu vaccine cannot give you Swine Flu.  The vaccines are fully licensed and clinically tested.

Is it safe for pregnant women to be vaccinated?

Yes. The vaccine is safe to use in pregnancy and is recommended for all women from 14 weeks pregnant to 6 weeks after giving birth. Pregnant women under fourteen weeks pregnant who have an existing at-risk medical condition are also advised to get the vaccine.

Is there anyone who cannot get Swine Flu vaccine?

The vaccine should not be given to children under 6 months of age, and should be postponed if you have a temperature over 38ºC. Everyone in the at-risk groups aged over 6 months and under 65 years should get the vaccine – unless they have a severe allergy to eggs or other substances in the vaccine or have previously had Guillain Barré Syndrome. If you have any of these allergies or conditions you can discuss them and vaccination with your GP.

How long does it take the vaccine to work?

The vaccine starts to work within two weeks - our current advice is that to be fully protected from Swine Flu, people need a second dose of vaccine at least three weeks after the first dose.  However, it is hoped that more clinical information will emerge over the coming weeks confirming that one dose of vaccine will be enough to protect those aged 13 years and over.

What can I expect after vaccination?

The most common side effects will be mild and may include soreness, redness or swelling where the injection was given. Headache, fever, aches and tiredness may occur. Some people may have mild sweating and shivering as their immune system responds to the vaccine, but this is not Swine Flu and will pass after a day or so.

What if I don’t feel well after vaccination?

Take paracetamol or ibuprofen if you have a fever or any pain where the injection was given. If you are pregnant, take paracetamol for fever, not ibuprofen or aspirin. Avoid clothes rubbing against the injection area and drink plenty of fluids. Remember if you or a child is unwell after getting a vaccine, they could be sick for some other reason – don’t assume it’s the flu vaccine and take medical advice if needed.

Do I have to pay for the vaccine?

The vaccine and its administration are free of charge for everyone. You may be asked for your PPSN (Personal Public Service Number) when you go to have your vaccine.

We would urge all our Alpha-1 patients to talk to your GP and make an appointment for a Swine Flu Vaccine over the coming weeks.