The 4th International Alpha-1 Patient Congress and International Research Conference on Alpha-1 Antitrypsin Deficiency took place in Barcelona in April this year.
We were privileged to be asked to attend as country delegate and patient representing the Alpha One Foundation in Ireland.

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Congratulations to all the ladies who took part in this year’s Flora Women’s Mini Marathon on the June Bank Holiday weekend. We are very grateful for every fundraising effort which helps us to continue our national screening programme for Alpha-1.

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In April 1963, Swedish researchers Carl-Bertil Laurell and Sten Eriksson published their landmark research on the discovery of Alpha-1 Antitrypsin Deficiency. To commemorate the 50th anniversary of the discovery, the Fourth International Alpha-1 Patient Congress and an international Research Conference on Alpha-1 Antitrypsin Deficiency will be held in Barcelona, Spain, April 11th - 13th, 2013.

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The 29th of February 2012 is the 5th International Rare Disease Day, and to raise awareness of this day a promotional video was recorded featuring people who have a rare disease. The video was shot in Dublin and includes one of our Alpha-1 patients, Josephine McGuirk.

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The Annual Alpha-1 Patient Conference for 2011 was a big success. Thanks to everyone that turned up on the day. The Alpha-1 Patient Support group had a successful meeting in the afternoon. They discussed future fundraising and awareness projects and got plenty of ideas from Angela McBride, Director of Development, Alpha-1 Foundation, USA.

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