VHI Womens Mini Marathon 2016
Thursday, April 28th 2016 09:06
article thumbnailThe VHI Women's Mini Marathon is taking place this year on bank holiday Monday June 6th in Dublin and as ever we welcome ladies to take part to raise funds and awareness for the Alpha One Foundation. The VHI Women's Mini Marathon is the largest one day charity event in Ireland with over 40,000 women participating every...
Alpha-1 Discussion on Highland Radio
Monday, April 25th 2016 13:25
article thumbnailLast August Anne Gormley from Ramelton in Co. Donegal was interviewed on the popular Shaun Doherty Show on local station Highland Radio to talk about her diagnosis of COPD and Alpha-1.  Anne spoke powerfully and bravely about how difficult day to day tasks are when every breath is a struggle.  She also discussed how her...
Organ Donor Awareness Week 2016
Monday, April 4th 2016 16:34
article thumbnailThis week is Organ Donor Awareness Week 2016 which runs from April 2nd to 9th.  There are approximately 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants. Thanks to the gift of organ donation over 3,000 people in Ireland have been given a new lease of life.  In 2015, 266 organs...
Have You Been Diagnosed with Alpha-1 Recently?
Wednesday, March 30th 2016 16:04
article thumbnailHave you been diagnosed with alpha-1 antitrypsin deficiency (Alpha-1) recently?  Have you discussed this information with your family?  If you have been diagnosed with Alpha-1 other members of your family could also have this genetic condition. This is because Alpha-1 is caused by genes we inherit from our parents. We all have...
National Rare Diseases Office
Wednesday, February 24th 2016 15:01
article thumbnailThe National Rare Diseases Office (NRDO) was established in June 2015 by the Health Services Executive (HSE).  It is staffed by information scientists who have significant experience working with individuals and families affected by rare disorders.  The NRDO is based at the Mater Misericordiae University Hospital in Dublin...
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.
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