Chronic Disease in Ireland
Friday, August 7th 2015 13:31
article thumbnailA new website was launched recently aiming to increase awareness and understanding of chronic disease in Ireland. The website, www.chronic-disease.ie contains information and statistics on long term diseases including Atrial Fibrillation, Diabetes, Chronic Obstructive Pulmonary Disease (COPD) and Asthma. The site, managed by...
Annual Alpha-1 Patient Conference 2015
Thursday, July 30th 2015 14:48
article thumbnailThe Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda are yet to be confirmed however following on from previous years it guarantees to be a full informative day for those with Alpha-1 as well as family...
article thumbnailA Donegal family are launching a book of poetry in memory of their brother who had Alpha-1.  The book of poems written by their brother is called “Window to my World” and the launch is taking place on Friday August 21st at 8pm in the Resource Centre in Manorcunningham, Co. Donegal.  John O’Donnell from Manorcunningham sadly passed...
article thumbnailCOPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD).  COPD is a term used to include chronic bronchitis, emphysema or a combination of both conditions. COPD Support Ireland is Ireland's only national COPD support and advocacy body,...
article thumbnailFindings from CSL Behring's RAPID study have demonstrated the effectiveness of augmentation therapy in slowing emphysema due to Alpha-1. CSL Behring, a global biopharmaceutical company sponsored the study in which 180 severely deficient Alpha-1 patients were randomly assigned to receive either the augmentation product...
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.
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