article thumbnailOver 200 people from 26 countries attended the 5th  Alpha-1 Global Patient Congress in Barga, Italy earlier this month. Speakers included renowned Alpha-1 scientists, clinicians, industry partners, patients, caregivers and familes. The Congress was the first organised by Alpha-1 Global, a program of the Alpha-1 Foundation...
International Clinical trials day - Open Day
Friday, April 17th 2015 10:39
article thumbnailTuesday 20th May is International Clinical Trials Day and to mark this day an open day is being held at the Clinical research facility (CRF) in St. James’s Hospital aimed towards the public and patients. The aim of this open day is to inform patients, research participants, support groups and the general public on what...
Alpha-1 Global Patient Congress 2015
Thursday, April 9th 2015 13:50
article thumbnailAlpha-1 Global is hosting the 2015 Alpha-1 Global patient Congress this weekend; 9-11 April in Barga, Italy. Alpha-1 patients from around the world as well as Alpha-1 community leaders, organisations and healthcare professionals will be in attendance.  The aim of this years congress is to 1) build cohesive communication...
National Rare Disease Office To Open Soon
Thursday, April 2nd 2015 09:24
article thumbnailThe HSE has stated Ireland’s first National Rare Disease Office is expected to open officially in the second quarter of 2015. The establishment of a National Rare Disease Office (NRDO) was one of the key recommendations of the Department of Health’s first national rare disease plan, ‘A Rare Disease Plan for Ireland...
Leitrim Observer Interview with Colm Costello
Friday, March 27th 2015 14:56
article thumbnailHaving been diagnosed with Alpha-1 Antitrypsin Deficiency at just six months old,  Colm Costello from Ballinamore, Co.Leitrim was one of the youngest patients to undergo a liver transplant operation in Ireland in May 2007 when he was just 18-years-old. Despite the disorder, Colm was able to live a relatively normal young life,...
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, along with cystic fibrosis, is the commonest genetic lung disease in Ireland. It severely affects more than 12,000 people, with another 170,000 carriers also at risk of lung and liver disease. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.
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