Chief Executive Officer Alpha One Foundation
Friday, April 21st 2017 10:46
article thumbnailThe Alpha One Foundation is recruiting a new Chief Executive Officer to lead a small team of dedicated staff and co-ordinate policy implementation, operations, fundraising, financial control, media strategy, communications with and support of Alpha-1 individuals and who will deliver a range of public engagement and...
article thumbnailAlpha-1 patients receiving the life-changing therapy Respreeza protested outside the offices of the Health Service Executive (HSE) at the end of February to demand that the HSE and Minister commit to long-term funding of the drug. The patients said the treatment is highly effective and had changed their lives after the...
Remembering John Walsh
Wednesday, March 22nd 2017 10:51
article thumbnailWe were deeply saddened to hear of the passing of John Walsh, co-founder and CEO of the US Alpha-1 Foundation on Tuesday, March 7th. John was an inspirational leader for the Alpha-1 community not just in the USA but worldwide. A tireless advocate for Alpha-1 and the search for a cure, John’s enthusiasm was infectious and his warm...
Alpha-1 Global Patient Congress 2017
Thursday, March 16th 2017 16:20
article thumbnailThe 6th Alpha-1 Global Patient Congress is taking place from April 6th to 8th in Lisbon, Portugal. This biennial conference is an opportunity for the Alpha-1 community around the world to meet, learn, and share information. The conference starts on Thursday evening, April 6th, with a welcome reception and networking...
article thumbnailAs a six month old infant, Catriona Garry developed full-blown liver cirrhosis caused by Alpha-1. Three years later, in 1999, she received a life-saving liver transplant. In 2008, she also received a kidney transplant. Inspired by her daughter, Catriona's mother Joan is now pursuing a nursing degree. To read more click...
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.