Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Would You Like to Become a Patient Expert?
EUPATI is a new European Union training programme designed to help patients become directly involved in the research and development of new medicines. Five Irish patients joined the course in October 2014. The second cycle of the EUPATI Patient Expert Training Course will be accepting applications from January 19th 2015, and the deadline for submitting an application is March 31st.
EUPATI is a patient-led initiative and aims to develop scientifically reliable, objective, comprehensive information to patients on research and development of new medicines. EUPATI will produce educational material, training courses and a public internet library to educate and grow the number of patient advocates equipped with the necessary information to participate in the medicines research and development process.
An excellent article on EUPATI was published in Nature Medicine magazine in March which featured some patient stories. The article can be read by clicking here. Another article by EURORDIS the European Rare Disease organisation highlighted and praised the unique and innovative EUPATI training programme.
Click here for more information on how to apply to the EUPATI training programme.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie