Alpha-1 Patient Conference Friday October 7th 2011
Full agenda available below.
09.30 Registration, Tea and Coffee
10.00 Prevalence of Alpha-1 in Ireland Dr Tomas Carroll, Alpha One Foundation
10.30 Adherence in Chronic Diseases Dr Frank Doyle, Lecturer in Psychology, RCSI
11.00 Alpha-1 Developments and Children diagnosed with Alpha-1 Prof N.G. McElvaney, Respiratory Consultant, Beaumont Hospital
11.30 Citizen Information Services Cristina Santamaria, Development Manager, Northside Citizen Information
12.00 Patient Empowerment Angela McBride, Director of Development, Alpha-1 Foundation, US
12.45 Light Lunch Provided in College Cafeteria Representatives from the following groups will be present during this interval Health Promotion Unit Beaumont Hospital, Children’s Liver Disease Ireland Asthma Society of Ireland Citizen Information Services
14.00 Pulmonary Rehabilitation/Breath Smart Programme Dr Noel McCaffery, Medical Director, Breath Smart Programme, DCU
14.40 Alpha-1 Support Group Meeting
16.00 Close
The Patients’ Meeting will be held in the Marino Institute of Education. Please see location and directions below:
Location:
Marino Institute of Education, Griffith Avenue, Dublin 9 Ireland t: +353 1 805 7700
Directions from the City Centre From the top of O Connell Street, drive past Parnell Square to the Drumcondra Road. Follow the signs to the airport. After the Skylon Hotel, take a right at the next large crossroads; this brings you down Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education. Directions from the M50 After the West link toll Booth on the M50 drive towards the Airport. Take a right exit towards the City centre from Junction 3 at the M50. Drive the MI to the N1 towards the City Centre. After the Regency Hotel take a left onto Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education. Directions from the Airport Exit the Airport and drive on the MI to the N1 towards the City Centre. After the Regency Hotel take a left onto Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
Car Parking Complimentary Car Parking Facilities are available in the grounds for up to 150 cars.
Info Centre
WhatisAlpha-1Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
WhatisAlpha-1AntitrypsinDeficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
HowDoIGetTested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie
Agenda for 2011 Patient Meeting
Alpha-1 Patient Conference Friday October 7th 2011
Full agenda available below.
09.30 Registration, Tea and Coffee
10.00 Prevalence of Alpha-1 in Ireland
Dr Tomas Carroll, Alpha One Foundation
10.30 Adherence in Chronic Diseases
Dr Frank Doyle, Lecturer in Psychology, RCSI
11.00 Alpha-1 Developments and Children diagnosed with Alpha-1
Prof N.G. McElvaney, Respiratory Consultant, Beaumont Hospital
11.30 Citizen Information Services
Cristina Santamaria, Development Manager, Northside Citizen Information
12.00 Patient Empowerment
Angela McBride, Director of Development, Alpha-1 Foundation, US
12.45 Light Lunch Provided in College Cafeteria
Representatives from the following groups will be present during this interval
Health Promotion Unit Beaumont Hospital,
Children’s Liver Disease Ireland
Asthma Society of Ireland
Citizen Information Services
14.00 Pulmonary Rehabilitation/Breath Smart Programme
Dr Noel McCaffery, Medical Director, Breath Smart Programme, DCU
14.40 Alpha-1 Support Group Meeting
16.00 Close
The Patients’ Meeting will be held in the Marino Institute of Education. Please see location and directions below:
Location:
Marino Institute of Education,
Griffith Avenue, Dublin 9 Ireland
t: +353 1 805 7700
Directions from the City Centre
From the top of O Connell Street, drive past Parnell Square to the Drumcondra Road.
Follow the signs to the airport.
After the Skylon Hotel, take a right at the next large crossroads; this brings you down Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
Directions from the M50
After the West link toll Booth on the M50 drive towards the Airport.
Take a right exit towards the City centre from Junction 3 at the M50.
Drive the MI to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
Directions from the Airport
Exit the Airport and drive on the MI to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
Car Parking Complimentary Car Parking Facilities are available in the grounds for up to 150 cars.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie