Alpha-1 Conference 2019 – Save the Date

September 16, 2019 Alpha1 Admin Comments Off

Alpha-1 Conference 2019 takes place on Friday, October 25th in Marino Institute of Education in Dublin. Special guest is Miriam O’Day, CEO and President of the US Alpha-1 Foundation. The theme for this year is “How can we increase Awareness?” with a special emphasis on the patient voice and its importance. Other speakers include Dr. Derick Mitchell (IPPOSI) and Professor Gerry McElvaney from the National Centre of Expertise for Alpha-1 at Beaumont Hospital. 


Alpha-1 is a genetic condition that can cause lung, liver, and skin disease. However, the risk of health problems can be greatly reduced by lifestyle choices such as stopping smoking. There are large numbers affected by the condition in Ireland (more on this here). 

If you are affected by Alpha-1, or know someone who is, why not come along on Friday October 25th to learn more about Alpha-1? You will also meet the warm and welcoming Alpha-1 community. Attendance is free and lunch is included. To reserve your place email or call 01-8093871. 


AGENDA: Alpha-1 Conference 2019

This Year’s Theme: “How Can We Increase Awareness?”

Venue: Marino Institute of Education, Friday, October 25th 2019

09.30 Registration, Tea and Coffee

10.00 Conference Opening and Keynote Address
Miriam O’Day, CEO and President, Alpha-1 Foundation USA

10.40 The Patient Voice is the Strongest – The IPPOSI Patient Education Programme
Dr. Derick Mitchell – CEO, Irish Platform for Patient Organisations, Science & Industry (IPPOSI)

11.10 Break

11.30 New and Emerging Therapies and Treatments for Alpha-1
Professor Gerry McElvaney, National Centre of Expertise for AATD, Beaumont Hospital

12.10 Alpha-1 Global Conference 2019 – Highlights & Learnings
Niamh Kelly & Aideen Cleary

12.30 The National AATD Targeted Detection Programme & National AATD Registry: An Update
Dr. Tomás Carroll, Alpha-1 Foundation Ireland and RCSI

13.00 Light Lunch Provided in College Cafeteria

14.00 Smoking Cessation and Alpha-1 – Inheriting Risk on the Double
Mansour Alkhunaizi, RCSI Final Year Medical Student

14.15 Answering The SZ Question – An Irish Family Study
Dr. Alessandro Franciosi, Clinical Lecturer and Researcher, RCSI

14.45 Exercise and Alpha-1 – What’s the point?
Eóin Durkan, PhD Student, School of Health and Human Performance, Dublin City University

15.00 The ZZ Family Study – A New Research Study
Dr. Oliver McElvaney, RCSI Researcher

15.15 Closing Remarks.