Alpha-1 Patient Involved in Rare Disease Day 2012

June 10, 2014 Alpha1 Admin Comments Off

The 29th of February 2012 is the 5th International Rare Disease Day, and to raise awareness of this day a promotional video was recorded featuring people who have a rare disease. The video was shot in Dublin and includes one of our Alpha-1 patients, Josephine McGuirk.

The rare disease awareness video can be seen here. You can also read Josephine’s story in her own words here.