July 22, 2014 Comments Off

Upon diagnosis Alpha-1 patients can be fast-tracked to the National Alpha-1 Clinic in Beaumont Hospital for medical assessment, follow-up care and genetic counselling. The specialist Alpha-1 Clinic started in Beaumont Hospital in March 2010. Every Wednesday afternoon

July 17, 2014 Comments Off

The National Rare Disease Plan 2014 - 2018, published this month, outlines proposals for a new clinical care programme specifically for the treatment of rare diseases, which affect an estimated 6 to 8

July 7, 2014 Comments Off

European Respiratory Society (ERS) Vice President Professor Jorgen Vestbo together with leading experts examine the current and future burden of chronic obstructive pulmonary disease (COPD) in this excellent video. (more…)

June 27, 2014 Comments Off

For more information on fundraising and how to become involved in the patient support group you can contact us on 01-8093871 or email alpha1@rcsi.ie.  If you decide to organise an event in your

June 27, 2014 Comments Off

The National Alpha-1 Clinic is based at the National Centre of Expertise for AATD at Beaumont Hospital in Dublin. Here, a rapid access specialist Alpha-1 clinic is available for newly-diagnosed Alphas. The clinic provides

June 27, 2014 Comments Off

In May 2016 the HSE designated the Alpha-1 Clinical Unit at Beaumont Hospital (along with Alpha-1 Foundation Ireland) as the National Centre of Expertise for Alpha-1. Alpha-1 Foundation Ireland is based in the

June 27, 2014 Comments Off

People with Alpha-1 can be referred by GP or consultant from all over Ireland (including northern Ireland) to the National Centre of Expertise for AATD at Beaumont Hospital. For more information on the

June 26, 2014 Comments Off

All 2014 2013 2012 Archive COFFEE MORNING MAYNOOTH JUNE 2014 IRISH HEALTHCARE AWARDS MARCH 2014 ZUMBATHON NOVEMBER 2013 ANNUAL ALPHA-1 CONFERENCE OCTOBER 2013 COPD SUPPORT IRELAND OCTOBER 2013Alpha One Foundation Welcomes the Launch

June 25, 2014 Comments Off

Alpha-1 Antitrypsin Deficiency - Healthcare Provider's GuideAlpha-1 Antitrypsin Deficiency - Healthcare Provider's Guide 

June 25, 2014 Comments Off

National Alpha-1 Registry The National Alpha-1 Registry began in 2004. It is a confidential database that records medical information from Alpha-1 individuals. The registry is a vital tool for monitoring disease progression and