Congratulations to Carine and Niall Maher who successfully completed the RETRO Cannonball Rally on July 12-13. On their scenic but adrenaline-packed "Drive 4 Alpha-1" they raced from Kinsale to Bunratty to raise awareness of Alpha-1.

More

If you or someone you know has had a child recently diagnosed with Alpha-1 it can be a very stressful time for the whole family. Most often, children get a diagnosis of Alpha-1 due to liver problems they may be having from a very young age.

More

Is your workplace affecting your breathing?  Anyone with a pre-existing lung condition should consider risks that might exist in their workplace.  People with Alpha-1 are at risk of lung disease due to cigarette smoke or substances inhaled on a daily basis, like chemical vapours or fumes.

More

A major new report on the burden of lung disease on Ireland’s population has been published.  "Respiratory Health of the Nation 2018" provides an overview of the impact of respiratory disease in the country as well as information on 11 common respiratory conditions and their impact on two key population groups – children and older people.  The report draws information from a range of sources and provides the most accurate and comprehensive picture to date of our nation’s respiratory health.

More

Alpha-1 Foundation Ireland today (November 15th) welcomes the decision of the HSE/Department of Health and CSL Behring to approve the continued supply and administration of the life-changing therapy, Respreeza, for a small group of patients with Alpha-1.  The development is a huge relief to 19 of 21 patients who have been receiving the therapy for over 10 years on a "compassionate-use basis", from CSL Behring, the makers of the therapy.  Regrettably two of the original 21 patients died while off the treatment in 2017 as the supply and administration of the therapy was stopped for a period of 6 weeks. 

More