Alpha-1 Foundation Ireland attended the Health Research Charities Ireland (HRCI, formerly MRCG) research conference and 21st birthday celebration in Dublin on September 18th. It was a conference to showcase all of the patient-focused research being carried out by the 37 member organisations of HRCI.

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Alpha-1 Conference 2019 takes place on Friday, October 25th in Marino Institute of Education in Dublin. Special guest is Miriam O'Day, CEO and President of the US Alpha-1 Foundation. The theme for this year is "How can we increase Awareness?" with a special emphasis on the patient voice and its importance. Other speakers include Dr. Derick Mitchell (IPPOSI) and Professor Gerry McElvaney from the National Centre of Expertise for Alpha-1 at Beaumont Hospital. 

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A coffee morning in aid of Alpha-1 and in memory of the late Anna Cassidy will take place on Saturday 28th September between 11am and 2pm in the Methodist Hall in Donegal Town.

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Congratulations to Carine and Niall Maher who successfully completed the RETRO Cannonball Rally on July 12-13. On their scenic but adrenaline-packed "Drive 4 Alpha-1" they raced from Kinsale to Bunratty to raise awareness of Alpha-1.

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If you or someone you know has had a child recently diagnosed with Alpha-1 it can be a very stressful time for the whole family. Most often, children get a diagnosis of Alpha-1 due to liver problems they may be having from a very young age.

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