Alpha-1 Foundation Ireland today (November 15th) welcomes the decision of the HSE/Department of Health and CSL Behring to approve the continued supply and administration of the life-changing therapy, Respreeza, for a small group of patients with Alpha-1.  The development is a huge relief to 19 of 21 patients who have been receiving the therapy for over 10 years on a "compassionate-use basis", from CSL Behring, the makers of the therapy.  Regrettably two of the original 21 patients died while off the treatment in 2017 as the supply and administration of the therapy was stopped for a period of 6 weeks. 

More

Alpha-1 Conference 2018 took place in the Marino Institute of Education in Dublin on Friday, October 12th.  A large gathering braved Storm Callum and the severe weather warning, with some hardy souls rising as early as 4am that morning to make the long journey to Dublin.  A mix of familiar faces and first time attendees enjoyed tea, coffee and scones on arrival. 

More

Alpha-1 Conference 2018 takes place Friday, October 12th in Marino Institute of Education in Dublin. Special guest is Mr. Joe Duffy, RTE Broadcaster, who will open proceedings at 10am. The theme for this year is "Family Matters" with a special emphasis on the importance of family screening. 

More

We are delighted to announce that our Annual Alpha-1 Conference is taking place on Friday, October 12th in Marino Institute of Education in Drumcondra, Dublin 9. Registration starts at 9.30am and our special guest is Mr. Joe Duffy, RTE Broadcaster, who has kindly agreed to open our conference. The theme for this year is "Family Matters" with a special emphasis on the importance of family screening. 

More

The Alpha-1 Foundation Ireland is currently involved in an exciting Irish Research Council funded project in collaboration with Dublin City University Sport and MedEx Wellness. Eóin Durkan from the School of Health and Human Performance in DCU is examining the use of exercise in the treatment of people with Alpha-1 and COPD. Another aim of the project is to find out how physically active people with Alpha-1 are.

More