Around 250,000 of Irish people are carriers of the gene causing Alpha-1 antitrypsin deficiency, a genetic disorder that can affect the lungs, liver and skin and can be deadly if undiagnosed. Kevin Colfer and his sisters talk about their experiences with the condition, and why they want to increase awareness.

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Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for Alpha-1 Foundation Ireland.

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The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of the prestigious HRB Impact Award 2021.

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Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.  

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COVID-19 is a new illness that can affect your lungs and airways.  It is caused by a virus called coronavirus. 

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