For the first time in history, the European Alpha-1 Community celebrates an EU Alpha-1 Awareness Day tomorrow 25th April 2018. The goal is to raise further understanding about this genetic condition. AATD is most common in individuals of Northern European and Iberian descent. Despite its high prevalence in Europe, patients and healthcare providers continue to be poorly informed about Alpha-1, and an overwhelming number of individuals are therefore not correctly diagnosed with Alpha-1.

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Smoking is the number one risk factor for lung disease in those born with Alpha-1. The European Lung Foundation and the European Respiratory Society describe the benefits of quitting smoking in two excellent diagrams. Remember no matter how late in life one quits there are benefits to be gained. Avoiding smoking at all costs is incredibly important for anyone with Alpha-1. This is because if you have Alpha-1 and are a smoker, you will develop severe early onset lung disease in the form of COPD or emphysema. 
Find out more at: www.healthylungsforlife.org

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The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty of familiar faces as well as a lot of first time attendees.

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The Alpha One Foundation is pleased to announce participation in the MRCG-HRB Joint Funding Scheme 2017, a collaboration between the Health Research Board (HRB) and the Medical Research Charities Group (MRCG). 

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The Annual Alpha-1 Conference for 2017 will take place on Friday October 20th in Marino Institute of Education on Griffith Avenue in Dublin 9. We are delighted to announce this year's special guest speaker is the President and CEO of the US Alpha-1 Foundation Henry Moehring. Other speakers include Dr. Aisling de Paor from DCU School of Law who will discuss genetic discrimination in Ireland and Professor Gerry McElvaney who will highlight new and emerging therapies for Alpha-1.

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