We were deeply saddened to hear of the passing of John Walsh, co-founder and CEO of the US Alpha-1 Foundation on Tuesday, March 7th. John was an inspirational leader for the Alpha-1 community not just in the USA but worldwide. A tireless advocate for Alpha-1 and the search for a cure, John’s enthusiasm was infectious and his warm personality opened many doors in the name of Alpha-1.

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The 6th Alpha-1 Global Patient Congress is taking place from April 6th to 8th in Lisbon, Portugal. This biennial conference is an opportunity for the Alpha-1 community around the world to meet, learn, and share information.

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As a six month old infant, Catriona Garry developed full-blown liver cirrhosis caused by Alpha-1. Three years later, in 1999, she received a life-saving liver transplant. In 2008, she also received a kidney transplant. Inspired by her daughter, Catriona's mother Joan is now pursuing a nursing degree.

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The Alpha One Foundation is calling on the Minister for Health to intervene following a decision by the National Centre for Pharmacoeconomics (NCPE) not to approve funding of the life-changing therapy Respreeza. Respreeza is the only proven treatment that slows the progression of emphysema caused by severe alpha-1 antitrypsin deficiency (AATD) or Alpha-1.

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