The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. All Alpha-1 patients and their families are invited
A new smartphone app was recently launched to provide credible factual information about a range of illnesses to people in Ireland. (more…)
A new website was launched recently aiming to increase awareness and understanding of chronic disease in Ireland. The website, www.chronic-disease.ie, contains information and statistics on long term diseases including Atrial Fibrillation, Diabetes, Chronic
The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda are yet to
A Donegal family are launching a book of poetry in memory of their brother who had Alpha-1. The book of poems written by their brother is called “Window to my World” and the
COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD). COPD is a term used to include chronic
Findings from CSL Behring's RAPID study have demonstrated the effectiveness of augmentation therapy in slowing emphysema due to Alpha-1. (more…)
As a follow on from the 2014 study 'Web Information for Families of Children with Rare Diseases' The Saoirse Foundation is pleased to announce an addition to the proposed website of parents of
The new National Rare Disease Office was officially opened by Minister for Health Leo Varadkar, T.D. in the Mater Hospital in Dublin yesterday, June 4th. (more…)
A recent meeting in Dublin in November 2014 highlighted the area of public and patient involvement in research (known as PPI). PPI describes a variety of ways that researchers can engage with people
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