February 24, 2016 Comments Off

The National Rare Diseases Office (NRDO) was established in June 2015 by the Health Services Executive (HSE).  It is staffed by information scientists who have significant experience working with individuals and families affected

February 5, 2016 Comments Off

January 27th marked the launch of the EUPATI Toolbox on Medicines R&D – a massive online resource of over 3000 articles, factsheets, slides, infographics, webinars and videos on topics related to medicines research

February 5, 2016 Comments Off

COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD).  COPD  is a term used to include chronic

January 18, 2016 Comments Off

Rare Disease Day takes place every year in February worldwide in order to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.This years Rare Disease

December 21, 2015 Comments Off

In collaboration with Dublin City University Sport (DCU Sport) and MedEx Wellness, the Alpha One Foundation is delighted to announce an exciting new research project which is being co-funded by the Irish Research

November 20, 2015 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday 30th of October. Over 70 Alphas and their family members attended

November 19, 2015 Comments Off

The Alpha One Foundation Christmas Cards for 2015 are now available. They are great value at €5 per pack of 10 cards and include all our contact details as well as a brief

November 17, 2015 Comments Off

To coincide with World COPD Day on Wednesday November 18, COPD Support Ireland is undertaking a “Save Your Breath” awareness campaign which will run from Monday 16th to Friday 20th November. COPD Support

November 11, 2015 Comments Off

Members of the Respiratory Research Department in the Education and Research Centre in Beaumont Hospital were recently awarded 'Research Paper of the Year' for their paper, 'The Circulating Proteinase Inhibitor a-1 Antitrypsin Regulates

October 27, 2015 Comments Off

Alpha-1 was featured in a US health and wellness series 'Health Body Healthy Mind' in 2013. This episode which explores the cause, symptoms and treatment of Alpha-1 also features interviews with Alpha-1 patients