The National Rare Diseases Office (NRDO) was established in June 2015 by the Health Services Executive (HSE).  It is staffed by information scientists who have significant experience working with individuals and families affected by rare disorders.  The NRDO is based at the Mater Misericordiae University Hospital in Dublin 7. 

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January 27th marked the launch of the EUPATI Toolbox on Medicines R&D – a massive online resource of over 3000 articles, factsheets, slides, infographics, webinars and videos on topics related to medicines research and development, including how patients can be involved throughout this process.  Discover this important new EUPATI Toolbox here.

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COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD).  COPD  is a term used to include chronic bronchitis, emphysema or a combination of both conditions.

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Rare Disease Day takes place every year in February worldwide in order to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.This years Rare Disease Day will fall on February 29th. In Ireland the day will be marked by a conference in Dublin castle with more details on this to follow.

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In collaboration with Dublin City University Sport (DCU Sport) and MedEx Wellness, the Alpha One Foundation is delighted to announce an exciting new research project which is being co-funded by the Irish Research Council.

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