My name is Gerry Finnerty and I am an Alpha-1 patient. I have the ZZ form of the condition which is the most severe to be diagnosed with. This means both copies of
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Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for
The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of
Spring cleaning may not be good for your health. This was the experience of one Maynooth resident following her enthusiastic assault on a long-neglected oven. The cleaning agent used by Orla Keane, 56,
Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions. (more…)
COVID-19 is a new illness that can affect your lungs and airways. It is caused by a virus called coronavirus. (more…)
An Easy Guide to Rare Diseases in Ireland was launched on February 24th in the Mansion House in Dublin. The guide is designed for the general public, healthcare professionals and the government. It
Alpha-1 Conference 2019 took place in the Marino Institute of Education in Dublin on Friday, October 25th. The theme for Conference 2019 was “How Can We Increase Awareness?” and a diverse range of
People with COPD are invited to participate in an important new Irish study looking at the impact of COPD on mental health. (more…)
Alpha-1 Foundation Ireland attended the Health Research Charities Ireland (HRCI, formerly MRCG) research conference and 21st birthday celebration in Dublin on September 18th. It was a conference to showcase all of the patient-focused
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