November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

September 18, 2017 Comments Off

A new project called "Your Voice Matters; stories to build a better health service" has been launched by the HSE in conjunction with IPPOSI. To improve the health service, the HSE wants to find

September 14, 2017 Comments Off

Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really

September 12, 2017 Comments Off

The Annual Alpha-1 Conference for 2017 will take place on Friday October 20th in Marino Institute of Education on Griffith Avenue in Dublin 9. We are delighted to announce this year's special guest

May 30, 2017 Comments Off

The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 tomorrow Wednesday, May 31st at 12.30pm. The protest is to urge the Government to fund

May 2, 2017 Comments Off

Pharmaceutical Company Deadline Looms for 21 Alpha-1 Patients On Life-Changing Respreeza Therapy. With just 30 days to go, the clock is ticking towards a May 31 deadline when pharmaceutical company, CSL Behring, has

March 22, 2017 Comments Off

We were deeply saddened to hear of the passing of John Walsh, co-founder and CEO of the US Alpha-1 Foundation on Tuesday, March 7th. John was an inspirational leader for the Alpha-1 community

December 14, 2016 Comments Off

The Alpha One Foundation is calling on the Minister for Health to intervene following a decision by the National Centre for Pharmacoeconomics (NCPE) not to approve funding of the life-changing therapy Respreeza. Respreeza

November 3, 2016 Comments Off

We are delighted to showcase our new educational film on Alpha-1 which was officially launched at the Annual Alpha-1 Conference on October 7th. Funded by an educational grant from the Health Research Board