The 29th of February 2012 is the 5th International Rare Disease Day, and to raise awareness of this day a promotional video was recorded featuring people who have a rare disease. The video
Dear Friends of Alpha-1, In April 1963, Swedish researchers Carl-Bertil Laurell and Sten Eriksson published their landmark research on the discovery of Alpha-1 Antitrypsin Deficiency. To commemorate the 50th anniversary of the discovery,
Congratulations to all the ladies who took part in this year’s Flora Women’s Mini Marathon on the June Bank Holiday weekend. We are very grateful for every fundraising effort which helps us to continue
National Alpha-1 Targeted Detection Programme Alpha-1 Foundation Ireland is dedicated to increasing diagnosis, raising awareness and improving the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is a common inherited condition but is massively
The national alpha-1 antitrypsin deficiency (Alpha-1) registry of Ireland was established in 2005 to collect information on Alpha-1 individuals throughout the island of Ireland. The registry is a confidential database that records medical
Organisation Alpha-1 Foundation Ireland was founded in 2001 and is based in the RCSI Education and Research Centre at Beaumont Hospital. Vision That every Alpha-1 individual in Ireland is diagnosed and receives specialist
Commissioned by the Alpha-1 Foundation Ireland in collaboration with COPD Support Ireland and funded by the Health Research Board, this educational film describes the genetic condition alpha-1 antitrypsin deficiency (Alpha-1 for short). People
The late John O’Donnell from Donegal was a talented poet who developed lung disease at a young age. Limited physically by his condition, John became a keen observer of the world around him,
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