June 10, 2014 0 Comments

Congratulations to all the ladies who took part in this year’s Flora Women’s Mini Marathon on the June Bank Holiday weekend. We are very grateful for every fundraising effort which helps us to continue

June 10, 2014 0 Comments

Dear Friends of Alpha-1, In April 1963, Swedish researchers Carl-Bertil Laurell and Sten Eriksson published their landmark research on the discovery of Alpha-1 Antitrypsin Deficiency. To commemorate the 50th anniversary of the discovery,

June 10, 2014 0 Comments

The 29th of February 2012 is the 5th International Rare Disease Day, and to raise awareness of this day a promotional video was recorded featuring people who have a rare disease. The video

June 10, 2014 0 Comments

The Annual Alpha-1 Patient Conference for 2011 was a big success. Thanks to everyone that turned up on the day. The Alpha-1 Patient Support group had a successful meeting in the afternoon. They discussed

June 10, 2014 0 Comments

Our annual Alpha-1 patient meeting for 2010 was held on the 8th of October in Marino Institute of Education on Griffith Avenue in Dublin.  It was a great success with numerous speakers, a

June 10, 2014 0 Comments

The annual Alpha-1 patient meeting will be held on Saturday 10th October at 10.30am in Marino Institute of Education on Griffith Avenue, Dublin 9. All Alpha-1 patients and their families are invited to

June 10, 2014 0 Comments

The Flora Women's Mini Marathon takes place on Monday 1st June 2009. This is a unique opportunity for Alphas and their families in alliance with the Patient Support Group and the Alpha One

June 10, 2014 0 Comments

An Irish Alpha-1 patient Orla Keane had the opportunity to attend the 3rd Alfa Europe Alliance Meeting in Prague from May 9th to 10th. (more…)

June 10, 2014 0 Comments

The Alpha One Foundation had two representatives, Josephine McGuirk and John Hannan, attending the European Alpha-1 Conference which was held in Rome in September 2007. This was a great opprtunity for Irish Alphas

June 10, 2014 0 Comments

The 4th International Alpha-1 Patient Congress and International Research Conference on Alpha-1 Antitrypsin Deficiency took place in Barcelona in April this year.We were privileged to be asked to attend as country delegate and