Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for
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The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of
Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions. (more…)
COVID-19 is a new illness that can affect your lungs and airways. It is caused by a virus called coronavirus. (more…)
An Easy Guide to Rare Diseases in Ireland was launched on February 24th in the Mansion House in Dublin. The guide is designed for the general public, healthcare professionals and the government. It
In 2005 I started to attend Pilates classes as my back had begun to grumble again and I knew that the exercises would be helpful. I soon realised that when I had to
Is your workplace affecting your breathing? Anyone with a pre-existing lung condition should consider risks that might exist in their workplace. People with Alpha-1 are at risk of lung disease due to cigarette
Alpha-1 Conference 2018 took place in the Marino Institute of Education in Dublin on Friday, October 12th. A large gathering braved Storm Callum and the severe weather warning, with some hardy souls rising
We are delighted to announce that our Annual Alpha-1 Conference is taking place on Friday, October 12th in Marino Institute of Education in Drumcondra, Dublin 9. Registration starts at 9.30am and our special
For the first time in history, the European Alpha-1 Community celebrates an EU Alpha-1 Awareness Day tomorrow 25th April 2018. The goal is to raise further understanding about this genetic condition. AATD is
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