March 10, 2021 0 Comments

Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for

February 18, 2021 0 Comments

The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of

October 5, 2020 0 Comments

Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.   (more…)

March 5, 2020 0 Comments

COVID-19 is a new illness that can affect your lungs and airways.  It is caused by a virus called coronavirus.  (more…)

February 25, 2020 0 Comments

An Easy Guide to Rare Diseases in Ireland was launched on February 24th in the Mansion House in Dublin.  The guide is designed for the general public, healthcare professionals and the government.  It

May 24, 2019 0 Comments

In 2005 I started to attend Pilates classes as my back had begun to grumble again and I knew that the exercises would be helpful. I soon realised that when I had to

May 2, 2019 0 Comments

Is your workplace affecting your breathing?  Anyone with a pre-existing lung condition should consider risks that might exist in their workplace.  People with Alpha-1 are at risk of lung disease due to cigarette

October 24, 2018 0 Comments

Alpha-1 Conference 2018 took place in the Marino Institute of Education in Dublin on Friday, October 12th.  A large gathering braved Storm Callum and the severe weather warning, with some hardy souls rising

September 14, 2018 0 Comments

We are delighted to announce that our Annual Alpha-1 Conference is taking place on Friday, October 12th in Marino Institute of Education in Drumcondra, Dublin 9. Registration starts at 9.30am and our special

April 24, 2018 0 Comments

For the first time in history, the European Alpha-1 Community celebrates an EU Alpha-1 Awareness Day tomorrow 25th April 2018. The goal is to raise further understanding about this genetic condition. AATD is