November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

November 9, 2017 Comments Off

Smoking is the number one risk factor for lung disease in those born with Alpha-1. The European Lung Foundation and the European Respiratory Society describe the benefits of quitting smoking in two excellent diagrams.

September 14, 2017 Comments Off

Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really

September 12, 2017 Comments Off

The Annual Alpha-1 Conference for 2017 will take place on Friday October 20th in Marino Institute of Education on Griffith Avenue in Dublin 9. We are delighted to announce this year's special guest

July 25, 2017 Comments Off

The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs.  The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the

December 14, 2016 Comments Off

The Alpha One Foundation is calling on the Minister for Health to intervene following a decision by the National Centre for Pharmacoeconomics (NCPE) not to approve funding of the life-changing therapy Respreeza. Respreeza

September 24, 2015 Comments Off

A new smartphone app was recently launched to provide credible factual information about a range of illnesses to people in Ireland. (more…)

August 7, 2015 Comments Off

A new website was launched recently aiming to increase awareness and understanding of chronic disease in Ireland. The website, www.chronic-disease.ie, contains information and statistics on long term diseases including Atrial Fibrillation, Diabetes, Chronic

July 24, 2015 Comments Off

A Donegal family are launching a book of poetry in memory of their brother who had Alpha-1.  The book of poems written by their brother is called “Window to my World” and the

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