April 30, 2015 Comments Off

Over 200 people from 26 countries attended the 5th  Alpha-1 Global Patient Congress in Barga, Italy earlier this month. Speakers included renowned Alpha-1 scientists, clinicians, industry partners, patients, caregivers and families. (more…)

December 17, 2014 Comments Off

Tests Required There are 2 tests required to diagnose alpha-1 antitrypsin deficiency. The first test is an alpha-1 antitrypsin (AAT) level, the second more informative test is an AAT phenotype. An AAT phenotype

December 2, 2014 Comments Off

The Science Squad on RTE1 on Monday evening, December 1st ran an excellent piece on Alpha-1.  It featured an interview with Professor McElvaney and 2 inspirational Alpha-1 patient stories from Stephen Smith and

September 17, 2014 Comments Off

Researchers from the Alpha One Foundation, the Royal College of Surgeons in Ireland and Harvard University have made a major breakthrough in identifying people who have an increased risk of developing COPD (chronic

September 17, 2014 Comments Off

Alpha-1 patient Josephine McGuirk and Professor Gerry McElvaney were guests on national station TV3's morning show Ireland:AM on February 3rd, 2011.  This was an excellent discussion about Alpha-1 and the importance of participating

June 10, 2014 Comments Off

The national alpha-1 antitrypsin deficiency (Alpha-1) registry of Ireland was established in 2005 to collect information on Alpha-1 individuals throughout the island of Ireland. The registry is a confidential database that records medical

April 7, 2009 Comments Off

Not many people have heard of Alpha-1 and it was new to me until about nine years ago when my brother died. (more…)

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