June 7, 2018 Comments Off

The Alpha-1 Foundation Ireland is currently involved in an exciting Irish Research Council funded project in collaboration with Dublin City University Sport and MedEx Wellness. Eóin Durkan from the School of Health and

April 24, 2018 Comments Off

For the first time in history, the European Alpha-1 Community celebrates an EU Alpha-1 Awareness Day tomorrow 25th April 2018. The goal is to raise further understanding about this genetic condition. AATD is

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

November 9, 2017 Comments Off

Smoking is the number one risk factor for lung disease in those born with Alpha-1. The European Lung Foundation and the European Respiratory Society describe the benefits of quitting smoking in two excellent diagrams.

November 7, 2017 Comments Off

The Alpha One Foundation is pleased to announce participation in the MRCG-HRB Joint Funding Scheme 2017, a collaboration between the Health Research Board (HRB) and the Medical Research Charities Group (MRCG).  (more…)

September 18, 2017 Comments Off

A new project called "Your Voice Matters; stories to build a better health service" has been launched by the HSE in conjunction with IPPOSI. To improve the health service, the HSE wants to find

September 14, 2017 Comments Off

Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really

September 12, 2017 Comments Off

The Annual Alpha-1 Conference for 2017 will take place on Friday October 20th in Marino Institute of Education on Griffith Avenue in Dublin 9. We are delighted to announce this year's special guest

August 10, 2017 Comments Off

Alpha One Foundation calls on Minister to reconsider decision for patients who have no other therapy option -Drug company, CSL Behring, urged not to stop therapy for 21 patients already receiving drug on

July 25, 2017 Comments Off

The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs.  The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the

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