May 11, 2016 Comments Off

Rising star of the silver screen, Sing Street actor Ferdia Walsh-Peelo, today joined with RTÉ Two Tube's Bláthnaid Treacy and Stephen Byrne to launch a nationwide movie competition Lovin' Our Lungs to highlight

April 28, 2016 Comments Off

The VHI Women's Mini Marathon is taking place this year on bank holiday Monday June 6th in Dublin and as ever we welcome ladies to take part to raise funds and awareness for

April 27, 2016 Comments Off

Karen Redmond, consultant thoracic and lung transplant surgeon and her team at the Mater Misericordiae University Hospital in Dublin have broken new ground by carrying out a new type of lung transplant procedure

April 25, 2016 Comments Off

Last August Anne Gormley from Ramelton in Co. Donegal was interviewed on the popular Shaun Doherty Show on local station Highland Radio to talk about her diagnosis of COPD and Alpha-1.  Anne spoke

April 4, 2016 Comments Off

This week is Organ Donor Awareness Week 2016 which runs from April 2nd to 9th.  There are approximately 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants. Thanks to

March 30, 2016 Comments Off

Have you been diagnosed with alpha-1 antitrypsin deficiency (Alpha-1) recently?  Have you discussed this information with your family?  If you have been diagnosed with Alpha-1 other members of your family could also have

February 24, 2016 Comments Off

The National Rare Diseases Office (NRDO) was established in June 2015 by the Health Services Executive (HSE).  It is staffed by information scientists who have significant experience working with individuals and families affected

February 5, 2016 Comments Off

January 27th marked the launch of the EUPATI Toolbox on Medicines R&D – a massive online resource of over 3000 articles, factsheets, slides, infographics, webinars and videos on topics related to medicines research

February 5, 2016 Comments Off

COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD).  COPD  is a term used to include chronic

January 18, 2016 Comments Off

Rare Disease Day takes place every year in February worldwide in order to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.This years Rare Disease

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