July 6, 2015 Comments Off

COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD).  COPD is a term used to include chronic

June 29, 2015 Comments Off

Findings from CSL Behring's RAPID study have demonstrated the effectiveness of augmentation therapy in slowing emphysema due to Alpha-1. (more…)

June 11, 2015 Comments Off

As a follow on from the 2014 study 'Web Information for Families of Children with Rare Diseases' The Saoirse Foundation is pleased to announce an addition to the proposed website of parents of

June 5, 2015 Comments Off

The new National Rare Disease Office was officially opened by Minister for Health Leo Varadkar, T.D. in the Mater Hospital in Dublin yesterday, June 4th. (more…)

June 3, 2015 Comments Off

A recent meeting in Dublin in November 2014 highlighted the area of public and patient involvement in research (known as PPI).  PPI describes a variety of ways that researchers can engage with people

May 28, 2015 Comments Off

There are just four days to go until the VHI Women's Mini Marathon which takes place next bank holiday Monday, June 1st at 2pm. As ever we encourage ladies to take part to

May 28, 2015 Comments Off

Simon Hamilton, NI Health Minister recently launched a new report which examined progress made in reducing exposure to second-hand smoke in Northern Ireland incorporating a 5 year review of smoke-free legislation. (more…)

May 8, 2015 Comments Off

The American Thoracic Society (ATS) 2015 International Conference will take place May 15-20 in Denver Colorado. The ATS is a leading medical association dedicated to advancing lung, critical care and sleep medicine. (more…)

April 30, 2015 Comments Off

Over 200 people from 26 countries attended the 5th  Alpha-1 Global Patient Congress in Barga, Italy earlier this month. Speakers included renowned Alpha-1 scientists, clinicians, industry partners, patients, caregivers and families. (more…)

April 17, 2015 Comments Off

The 20th of May each year is celebrated as International Clinical Trials Day and to mark this a public open day is being held at the Clinical Research Facility (CRF) in St. James’s

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