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September 5, 2016 Comments Off

Hearty congratulations to Stephen Smith who won 3 bronze medals for Team Ireland at the European Transplant Games. Stephen had a successful double lung transplant in the Mater Hospital in 2013 and was

July 7, 2016 Comments Off

Best of luck to Transplant Team Ireland and Cavan native Stephen Smith representing Ireland at the European Transplant and Dialysis Games in Finland from July 10th - 17th. Stephen (front row, 2nd from

May 23, 2016 Comments Off

The US Alpha-1 Foundation announced its 2016 grant awardees on Monday, May 16 during a reception at the American Thoracic Society (ATS) International Conference in San Francisco.  The 14 grant recipients will receive

April 25, 2016 Comments Off

Last August Anne Gormley from Ramelton in Co. Donegal was interviewed on the popular Shaun Doherty Show on local station Highland Radio to talk about her diagnosis of COPD and Alpha-1.  Anne spoke

April 4, 2016 Comments Off

This week is Organ Donor Awareness Week 2016 which runs from April 2nd to 9th.  There are approximately 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants. Thanks to

March 30, 2016 Comments Off

Have you been diagnosed with alpha-1 antitrypsin deficiency (Alpha-1) recently?  Have you discussed this information with your family?  If you have been diagnosed with Alpha-1 other members of your family could also have

November 20, 2015 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday 30th of October. Over 70 Alphas and their family members attended

August 7, 2015 Comments Off

A new website was launched recently aiming to increase awareness and understanding of chronic disease in Ireland. The website, www.chronic-disease.ie, contains information and statistics on long term diseases including Atrial Fibrillation, Diabetes, Chronic

July 30, 2015 Comments Off

The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda are yet to

February 26, 2015 Comments Off

EUPATI is a new European Union training programme designed to help patients become directly involved in the research and development of new medicines. Five Irish patients joined the course in October 2014. The second