Pharmaceutical Company Deadline Looms for 21 Alpha-1 Patients On Life-Changing Respreeza Therapy. With just 30 days to go, the clock is ticking towards a May 31 deadline when pharmaceutical company, CSL Behring, has
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We are delighted to showcase our new educational film on Alpha-1 which was officially launched at the Annual Alpha-1 Conference on October 7th. Funded by an educational grant from the Health Research Board
The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin last Friday October 7th. Over 90 Alphas and family members attended what was
This week is Organ Donor Awareness Week 2016 which runs from April 2nd to 9th. There are approximately 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants. Thanks to
The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday 30th of October. Over 70 Alphas and their family members attended
A new smartphone app was recently launched to provide credible factual information about a range of illnesses to people in Ireland. (more…)
The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda are yet to
A Donegal family are launching a book of poetry in memory of their brother who had Alpha-1. The book of poems written by their brother is called “Window to my World” and the
The HSE has stated Ireland’s first National Rare Disease Office is expected to open officially in the second quarter of 2015. The establishment of a National Rare Disease Office (NRDO) was one of
Having been diagnosed with Alpha-1 Antitrypsin Deficiency at just six months old, Colm Costello from Ballinamore, Co.Leitrim was one of the youngest patients to undergo a liver transplant operation in Ireland in May
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